MOM: “We knew there was a problem before she was born and we thought it was dwarfism, but when she came---I had a C-section---she was broken up from her shoulders to her toes. There were a lot of healed fractures too, and her limbs were bowed. That’s when the doctors figured out she had Brittle Bone Disease (Osteogenesis imperfecta) as well as dwarfism. Hers is Type 3, which is severe. She’s had over a hundred broken bones in her life and of course a lot of surgeries. After so many, you lose count.”
DESTINY: “I can’t really play with my friends and do much that they do, so sometimes it’s hard and sad. I usually spend my time at home either doing work or watching TV or talking on the phone. Sometimes I get tired of it and want to go outside and be in nature, but really I can’t, since I can’t walk. It's hard to have privacy too. My mom and dad and brother have to carry me wherever I need to go in the house because I can't get my wheelchair through the doors. But there are good things about my life too. My family cheers me up when I get discouraged. They’re caring, loving, helpful to everybody, and they're good cooks and caretakers. I have a lot of friends at school, and I have a best friend too. I like music and drawing animals. I got to go to the zoo once when I was little, and I got to go to Florida too. I saw a crab. And people on the beach that we didn't even know carried my wheelchair across the sand so I could get in the water."
MOM: “She takes the bus back and forth to school, but she doesn’t get to go many places anymore because she’s older now and too heavy to lift. When she was small, my husband and I could put her folding wheelchair in the trunk, but it’s just too hard to get her in and out of the car now. I keep praying for a house with wider doors and for a wheelchair-accessible van. Everything else is okay. It would be wonderful if she could have a friend over and we could say, ‘Hey Destiny, let’s go to Baskin-Robbins and get ice cream.’ Things like that. Things every little girl likes to do."
DESTINY: “I’ll be 13 in April. I hope when I get older I’ll be able to drive where I want to go and do things on my own. I don’t know where I want to go to college yet, but I’m thinking about becoming an art teacher someday.”
DESTINY: “I can’t really play with my friends and do much that they do, so sometimes it’s hard and sad. I usually spend my time at home either doing work or watching TV or talking on the phone. Sometimes I get tired of it and want to go outside and be in nature, but really I can’t, since I can’t walk. It's hard to have privacy too. My mom and dad and brother have to carry me wherever I need to go in the house because I can't get my wheelchair through the doors. But there are good things about my life too. My family cheers me up when I get discouraged. They’re caring, loving, helpful to everybody, and they're good cooks and caretakers. I have a lot of friends at school, and I have a best friend too. I like music and drawing animals. I got to go to the zoo once when I was little, and I got to go to Florida too. I saw a crab. And people on the beach that we didn't even know carried my wheelchair across the sand so I could get in the water."
MOM: “She takes the bus back and forth to school, but she doesn’t get to go many places anymore because she’s older now and too heavy to lift. When she was small, my husband and I could put her folding wheelchair in the trunk, but it’s just too hard to get her in and out of the car now. I keep praying for a house with wider doors and for a wheelchair-accessible van. Everything else is okay. It would be wonderful if she could have a friend over and we could say, ‘Hey Destiny, let’s go to Baskin-Robbins and get ice cream.’ Things like that. Things every little girl likes to do."
DESTINY: “I’ll be 13 in April. I hope when I get older I’ll be able to drive where I want to go and do things on my own. I don’t know where I want to go to college yet, but I’m thinking about becoming an art teacher someday.”
Teachers at Destiny's school are teaming up with a local church, Trinity Baptist Church in Southaven, to help raise funds for her transportation needs. The event will be held Saturday, October 15, 2016. More information here: https://www.facebook.com/events/597287177120559/
Destiny's Ride to Adventure
"Join us for a 3-on-3 co-ed basketball tournament to help raise money for Destiny White, a 7th grade Southaven Middle School student. Destiny has Osteogenesis imperfecta, also known as brittle bone disease. This disease has caused her to break over 100 bones in her life. She can only move around in her wheelchair which has caused many restrictions when traveling, attending school activities, or simply running errands with her family. Destiny's parents are in need of a wheelchair accessible vehicle so we are raising money to help them do so! All proceeds will go to Destiny and her family to help them reach their goal."
Destiny's Ride to Adventure
"Join us for a 3-on-3 co-ed basketball tournament to help raise money for Destiny White, a 7th grade Southaven Middle School student. Destiny has Osteogenesis imperfecta, also known as brittle bone disease. This disease has caused her to break over 100 bones in her life. She can only move around in her wheelchair which has caused many restrictions when traveling, attending school activities, or simply running errands with her family. Destiny's parents are in need of a wheelchair accessible vehicle so we are raising money to help them do so! All proceeds will go to Destiny and her family to help them reach their goal."
Facts about Type III Osteogenesis imperfecta (quoted below) are taken from the Osteogenesis Imperfecta Foundation website:
Osteogenesis imperfecta (OI) is a genetic disorder characterized by bones that break easily, often from little or no apparent cause. A classification system of different types of OI is commonly used to help describe how severely a person with OI is affected. For example, a person may have just a few or as many as several hundred fractures in a lifetime. While the number of people affected with OI in the United States is unknown, the best estimate suggests a minimum of 20,000 and possibly as many as 50,000.
Type III
Osteogenesis imperfecta (OI) is a genetic disorder characterized by bones that break easily, often from little or no apparent cause. A classification system of different types of OI is commonly used to help describe how severely a person with OI is affected. For example, a person may have just a few or as many as several hundred fractures in a lifetime. While the number of people affected with OI in the United States is unknown, the best estimate suggests a minimum of 20,000 and possibly as many as 50,000.
Type III
- Bones fracture easily. Fractures often present at birth, and x-rays may reveal healed fractures that occurred before birth.
- Short stature.
- Sclera have a blue, purple, or gray tint.
- Loose joints and poor muscle development in arms and legs.
- Barrel-shaped rib cage.
- Triangular face.
- Spinal curvature.
- Respiratory problems possible.
- Bone deformity, often severe.
- Brittle teeth possible.
- Hearing loss possible.
- Collagen improperly formed.
NOTE: GoFundMe account for Destiny at http://www.gofundme.com/destinygoingplaces
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